Saturday, September 26, 2015
Vanguard voice biometric enrollment: the wrong way to do security
Wednesday, September 23, 2015
If you want to take a nonagenarian for a six hour flight to San Francisco...
If you want to take a mildly demented barely ambulatory nonagenarian out of his nursing home bed for a six hour flight to San Francisco you may be insane or murderous. Or perhaps your 93 yo WW II vet is in better shape than mine.
Or maybe you’re prepared.
I did this. Actually, my brother and I did this together, except for the plane flights where I went solo with Dad. We did it because my 93yo father had one request left in his life — to see his younger sister in San Francisco. And, thanks to an accident of Quebec’s healthcare and his disabled vet status, he had money to pay for the trip.
Of course when I agreed to fulfill his wish he was 3 months younger than when we actually went — and significantly stronger. Old old age is like that.
Stil, we went. And because my brother joined us in San Francisco it went pretty well. Luck helped — we had perfect flights and transportation.
I don’t know anyone else who has done this, but I’m sure hundreds have. Somebody gets those old vets out for Normandy ceremonies. On the other hand, I suspect those guys are in better shape than Dad (some of ‘em probably run foot races and jump hurdles).
If you want to do something like this, and before I dump all my trip memories (we aren’t doing this again), here’s what I learned:
- Airlines don’t make this super clear, but if you press a bit you can schedule wheelchair pickup from the front desk to the airplane seat. Do this. Do not do what I did, which was to make use of my father's transport wheelchair, walker, and my own strength. We might still be walking from the plane to the car rental office if a Montreal (YUL) security officer didn’t volunteer to push my father’s chair while i juggled luggage and walker. There’s no fee for checking a wheelchair or walker and you can also do plane side check with either. If you have the airlines doing wheelchair transport you’d check the transport chair and the walker in oversize baggage.
- During flights you want your 90+ yo in an aisle seat. They can’t necessarily get out of a window seat, especially when (in our case) the armrest divider was fixed. Inside passengers can typically squeeze buy ‘em - 90+ yo men tend to be small. Assume 2-3 bathroom trips a flight unless your guest has a catheter or is used to using a diaper. Bathroom trips require a physically strong companion — assuming your guest has some ambulatory ability. The seats need to be near the bathroom. We were in “business class seats” (not worth the money) and too far forward to use the assigned toilets, but the flight crew had us used first class which we could reach.
- You typically get to do special lines for customs and security. That helps. Carry food and snacks and water.
- You want two people for travel and care — at least one of whom should be strong (I’m strong, and my brother is stronger). At least one should be either a hospital or nursing home nurse (best) or a physician (not bad). If you’re using the airline wheelchair transport service you can make do with one person for that operation. Parenting experience is a plus.
- Get a “handicap” hotel room and an adjoining room with twin beds. My father needed an attendant for every bathroom visit — typically 2-5 a night. He slept in one of the twin beds and my brother and I took turns in the other. On our off night we slept in the handicapped room bed (king sized, one bed, which is weird hotel choice for a “handicapped” room but there you go). We used the handicapped bathroom with him.
- Whatever laxative routine is used at the care facility kick it up a notch. If warmed packed prunes are part of the routine bring those with you. Do not assume you’ll be able to buy them. Bring your dulcolax - both oral and suppository and glycerine suppository. Not ready to deal with poo? Don’t do the trip.
- Bring a waterproof bed sheet cover — as used with child travel.
- Wet wipes. Lots.
- Bibs - robust.
- Shirts: Purchase lightweight long sleeve travel shirts for summer travel. My father wears golf shirts at the Vets residence because he can take them on and off himself, but you need long sleeve shirts for sun protection and to reduce skin scrapes.
- Laundry: Assume you’ll do laundry 1-2 times, not least because you don’t want a lot of extra luggage. That still requires rolls of quarters at most hotels.
- If your nonagenarian uses pull-ups bring lots. If s/he doesn’t bring some.
- Assume most of the tourist stuff will be drive-by car touring. In our case I used Google and my own knowledge to construct a route made up of waypoints, then we used Google Maps on my iPhone to navigate from one waypoint to the next. Worked terribly well. a handicapped parking card is a huge help (my aunt was with us and we could use hers) but with two people one can manage the 93yo and the other can drive around until pickup.
- Very limited alcohol - messes up sleep.
- Assume one social meal and 4 hours of drive by touring per day max. Every hour (at least) schedule a walkabout/transfer to keep bodies moving.
- Four days is a good visit length: one to travel/recover, one to prep/travel, two to visit and tour.
- Bring comfortable OTA headphones for your 90+ yo to listen to audio on long trips — something like Bose noise canceling headphones. But buy a set of the cheap airline phones in case he doesn’t like ‘em. (My Apple buds didn’t work with the airplane audio mini-jacks.)
There’s more but that’s enough for now — and probably the most I can remember since most of the traumatic memories are already fading. The good memories, because this trip actually, amazingly, worked, are getting stronger.
It could have gone quite badly though. This isn’t for the faint of heart.
Tuesday, September 15, 2015
American economy 2015: Ta-Nehisi Coates and Donald Trump lead to the same conclusion.
Donald Trump as the voice of the non-college 50%. TNC on the mass (black) incarceration society - and reparations. Hundreds of colleges produce no earnings boost (but lots of debt).
There is a common thread. America needs 40 million non-college jobs that pay $30 an hour.
That is our 21st century “Manhattan project” class challenge.
Get creative.
Monday, September 14, 2015
Google Trends: Across my interests some confirmation and some big surprises.
I knew Google Trends was “a thing”, but it had fallen off my radar. Until I wondered if Craigslist was going the way of Rich Text Format. That’s when I started playing with the 10 year trend lines.
I began with Craigslist and Wikipedia...
- Craigslist is looking post-peak
- Wikipedia looks ill, but given how embedded it is in iOS I wonder if that’s misleading.
- Cancer: rock steady, slight dip in 2009, slight trend since, may reflect demographics
- Angina: downward trend, but slight. This could reflect lessening interest in search, but it may also reflect recent data on lipid lowering agents and heart disease.
- Exercise: pretty steady
- Uber: just to show what something hot looks like. (Another: Bernie Sanders)
- Inline skating (I do this) is dead and so is skateboarding
- Microsoft Excel is stable, but Google Sheets is way way up. Apple Numbers is doing a lot better than I expected.
- Special Needs has a slight downwards trend but Downs Syndrome has plummeted - perhaps due to America's eugenics program. I wonder if the fading of Downs syndrome is responsible for the modest decline in special needs searches.
- Cycling for exercise is somewhat down, with a nice seasonal spike pattern. Mountain biking has declined significantly.
- Cross Country Skiing varies (bet it’s snow depth) but seems constant at a low level
- CrossFit has probably peaked but is still popular.
- AI (artificial intelligence), much to my surprise, is way down.
- Growing use of searches on “Apple Quality” — probably not in a happy way (I’m betting this is Apple corp, not Apple fruit).
- Dementia is a slowly growing concern
- Backpacking is in a gentle decline
- Google seems to have flatlined and even Android is trending down, but Facebook has fallen off a cliff (hard to interpret, it’s so ubiquitous), Apple has slow growth but iPhone is only holding steady. Weirdly, Twitter looks rather like Facebook - not healthy at all.
- RSS. Sob.
- Health Informatics, my professional discipline, has had a big decline since 2004. It feels that way. SNOMED CT is in a lesser decline. On the other hand, family medicine is pretty stable (one weird 2011 peak) even as Geriatrics is in decline (WTF?)
- Carbon tax is off the radar and interest in global warming is way down. Be afraid.
- eBooks are post-peak - a failure to takeoff (I blame the DRM).
Some of these findings line up with my own expectations, but there were quite a few surprises. It’s illuminating to compare Excel to Google Sheets. The Downs Syndrome collapse is a marker for a dramatic social change — the world’s biggest eugenics program — that has gotten very little public comment. I didn’t think interest in AI would be in decline, and the Facebook/Twitter curves are quite surprising.
Suddenly I feel like Hari Seldon.
I’ll be back ...
See also:
Wednesday, September 09, 2015
Repairing a 2010 RockShox Monarch RT3 - good luck getting parts
My 2010 RockShox Monarch RT3 rear shock is on its deathbed. It needs a rebuild or replacement (much more expensive), but it’s hard to know if parts are available. It’s easy to find parts for the 2012 model — but are they compatible?
The net was little help — until now. Buried in a footnote in the 2012 Rockshox spare parts manual: "2011-2012 Monarch parts are not compatible with pre-2011 Monarch rear shocks."
Monday, September 07, 2015
Tick bite causing meat allergy? (alpha-gal oligosaccharide allergy)
When Emily saw repeated comments online about a tick bite causing allergies to red meat we first assumed it was a mass medical delusion.
Turns out the belief comes from a Vanderbilt University allergy researchers claims and a 2009 WaPo article.
… Scott Commins, an assistant professor of medicine and lead author of the U-Va. study published in the Journal of Allergy and Clinical Immunology, said that in susceptible people such as Newell, a tick bite that causes a significant skin reaction seems to trigger the production of an antibody that binds to a sugar present on meat called alpha-galactosidase, also known as alpha-gal. When a person who has the antibody eats meat, it triggers the release of histamine, which causes the allergic symptoms: hives, itching and, in the worst case, anaphylaxis.
But many questions remain unanswered, said Platts-Mills, whose research is continuing. His lab has collected data on more than 300 patients from across the country and abroad.
"We're sure ticks can do this," he said. "We're not sure they're the only cause." Nor do researchers know why anaphylaxis is so delayed or why only some people develop a problem after tick bites. They do know that the allergic reaction is dose-related: Eating a tiny amount of meat probably won't cause a serious reaction. A large steak will….
The University of Virginia’s Thomas Platts-Mills is pushing the tick theory — though a recent abstract (article is $40) equivocates (emphasis mine) ...
The alpha-gal story: Lessons learned from connecting the dots
Our recent work has identified a novel IgE antibody response to a mammalian oligosaccharide epitope, galactose-alpha-1,3-galactose (alpha-gal). IgE to alpha-gal has been associated with 2 distinct forms of anaphylaxis: (1) immediate-onset anaphylaxis during first exposure to intravenous cetuximab and (2) delayed-onset anaphylaxis 3 to 6 hours after ingestion of mammalian food products (eg, beef and pork). Results of our studies and those of others strongly suggest that tick bites are a cause, if not the only significant cause, of IgE antibody responses to alpha-gal in the southern, eastern, and central United States; Europe; Australia; and parts of Asia.
So the belief that a tick bite is causing a meat allergy has a basis in at least newspaper reporting and at least one team’s publications.
From my literature search it’s not clear anyone but Plats-Mills and his collaborators are making the strong connection to tick bites, much less to the Lone Star tick. I’d file this one under “suspect”. Of course that means that if Plats-Mills is right about the tick connection he will be well rewarded.
I’d bet he isn’t.
Sunday, September 06, 2015
On knee pain and the state of medical knowledge (updated)
One of the interesting things about being old (45+, sorry to tell you that) and active and is that we develop conditions that we then get to read about.
That's typical. But if you're old and active and a physician there’s a twist. You get to compare the medical textbooks (and web references to your personal experience, and because of the old-part this reading is further informed by a finely tuned bullshit detector.
The bullshit detector is first developed in medical school. No, it’s not when we learn that following the exam preparation advice of professors is suicide — that’s the betrayal and pit-of-knives detector. For me it was the illuminating moment when I realized my 1986 renal physiology professors really had no idea how the kidney really worked. In their hearts they knew this, but there were exams to write and textbooks to teach to — so they faked it.
Later we run into seemingly erudite residents and medical students who we sooner or later realize are just spinning during medical rounds. Attendings varied in their response, I think some were hapless while others found it amusing. Or not amusing.
Much later, sometime after the first few years of practice, we realize that most journal articles are rather like those residents. (More recently reproducibility studies have made this rather more apparent.) We begin to spot the handwaving in textbooks — and to treasure the few that are relatively honest about ignorance.
Which brings me to my the pain below my left patella (knee cap). It could be related to the patellar tendon, to the “fluid-filled sacs” (bursa) that are usually said to be [1] under and around various tendons and neighboring bones, or the knee joint (cartilage/arthritis).
The cause is important to treatment. There’s nothing much to do for arthritis except rest and general muscle strengthening. Patellar tendonosis is treated with knee extension exercise starting at 90 degrees, but something (I’ll get to that) called “patellar-femoral syndrome” is treated with knee extension exercise starting close to full extension. So it’s good to differentiate those two.
The differentiation turns out to be relatively simple. If pain hurts coming down stairs (down > up) it’s likely “patella-femoral syndrome”; you won’t be able to do resisted extension at 90 degrees of flexion but you’ll be fine doing it at at 10 degrees of flexion. Also, “patello-femoral syndrome” is much more common than patellar tendonpathy. A related characteristic is that discomfort is maximal between 15 and 35 degrees (stair descent) — so I have no discomfort extended or in a deep squat.
The medical knowledge/bullshit detector bit comes with reading about "patello-femoral syndrome”. As far back as 1990 one of our texts, “Practical Orthopedics” by Lonnie Mercier, refreshingly admitted that this might as well be called something like “sore knee syndrome”. It’s probably a bunch of things involving some degree of irritation of the bursae and tendons (patellar, iliotibial) beneath and below the patella along the course of the patellar tendon. We used to think it had something to do with the cartilage below the patella, but as far back as 1990 Mercier’s text suggested that “chondromalacia patellae" was relatively infrequent, not clearly related to symptoms, and ought to be carved out as a separate diagnosis.
Reviewing a 2007 AAFP article it looks like nothing fundamental has changed [2]. So points to Mercier.
I wasn’t able to find a persuasive evidence-based treatment program for “sore knee syndrome”; I liked Dr Lee Cohen’s PDF for its guide to resuming exercise [3]. Basically I’m avoiding what hurts (flexing knee on stair descent), doing what doesn’t hurt (high rep, low pressure cycling and swimming), doing near-full-extension quad cybex-style weight. I'll increase extension range as the knee improves, and I’ll try some of Dr. Cohen’s routines. I don’t like NSAIDs because of repeated studies showing they delay tendon healing, so not doing those.
Once I can do squats with 50 lbs or so (very light) and run a mile or so without discomfort I’ll go back to CrossFit...
- fn -
[1] human anatomy is more variable than the diagrams suggests
[2] I don’t particularly recommend that article btw. It reminded me a bit of 1986 renal physiology.
[3] Low intensity mountain and road biking feels fine, so I’m doing that. I’m “on leave” from CrossFit until I can do squats without pain or swelling — one of the great things about contract-free CrossFit at our gym is they’ll stop fees if we’re out for 2 weeks or more.
Update 9/12/2015: Occurred to me that I should change to flats on my mountain bike until the knee is done healing (it’s improving well). Normally SPD cleats allow a lot of lateral mention, but sometimes my mountain pedals get jammed with sand. That’s a formula for worsening my knee problem. So flats for now (which, these days, work pretty well anyway).
Update 11/24/2015: I learned a few more things, which really ought to be in a textbook.
My own knee did get better after a few weeks of CrossFit abstention, a bit less mountain biking (week off), and quad strengthening. Subsequently, however, I found CrossFit didn’t bother it much at all, but heavy mountain biking could be annoying. Since mountain biking season ended I have been mostly doing CrossFit and ice hockey — and it is now better. I ended up thinking the mountain biking was probably the greater aggravating factor.
Ahh, but there’s a twist as well. I have since learned that what mountain biking and stairway descent have in common is 15 degrees of flexion, which is when the patella is most in contact with the femur. At greater degrees of flexion strong quadriceps pull the patellar undersurface away from the femur — which is why my strong quadriceps limited the pain. Alas, the clinical presentation cannot distinguish inflammatory arthritis (idiopathic, as in OA involving primarily the synovium), from psoriatic arthritis (less idiopathic, with tendon involvement). In my case other clinical findings point to more chronic conditions - psoriatic arthritis or idiopathic inflammatory arthritis (aka, erosive osteoarthritis). So I’ll write a bit more about that sort of thing over time.
Tuesday, September 01, 2015
Family medicine board examination 2015: One last time.
I’m taking my family medicine board exams one last time. This is not entirely sensible. It’s been 21 years since I did family medicine, and 17 since I last saw a patient. I’m unlikely to practice again. The exam will be difficult; my brain is old and cruddy. (Long ago I did rather well on these, but it does help to actually practice medicine.)
Still, for one reason or another, I’m committed to doing the exam this November. I’ve slogged my way through the ABFM’s intricate preparations, including, for the non-practicing candidate, 6 self-assessment modules (SAMs) and one “alternative” module (which was quite awful and may have been since withdrawn). I even managed to meet the under-documented CME requirements [1]. The expensive Self-Assessment Modules varied from quite good to rather poor; alas the simulations are not worth continued investment [2].
When I’m done I’ll revise this post with what I end up with. By far the best guide I’ve found for someone like me was something written in 2008 (*cough*). I’m basically following my old recommendations (including ignoring audio CME/podcasts). For example:
- ABFM | Exam Preparation: look for the tiny links at bottom to Study Tips and 2-week checklist. Some of this advice is wrong for me - and probably for most people. Still worth a read.
- ABFM | Exam Content: this page hard for me to find - maybe my problem. I focus on topics with 5% and above.
- I have old online medical notes written back when we thought HTML would be a good format for knowledge sharing and documentation. How naive we were! My medical notes started out in pen, moved to Symantec MORE 3.1, then FrontPage/HTML and now they’re back to an outliner (OmniOutliner 3). I have to write to learn. When I’m done I’ll attach a version of my notes here, but they’re really only going to be useful for me.
- SAM Module Review: The SAM modules were a mixed bag, but the question explanations are superb summaries of current/expected knowledge. I’m mining those for my notes.
- ABFM in training exam: The ABFM provides 3 years of teams. I’m studying these in depth, identifying any areas of strength, guiding my study, and generally awakening old memories.
- Online references: this has changed, and not for the better. There’s much less available for “free” online than there was in 2008 [3]. Only Scott Moses’ self-funded hobby/obsession remains - the FP Notebook. So I’m buying selected paper references [4] like the venerable Washington Manual and Sanford Antimicrobial therapy. Some of my old textbooks (EKG interpretation) still work.
- AAFP Board Review prep: skip over the expensive and inefficient modules and find the free (38 credit!) Board Review Questions. I think this is what the ABFM “exam prep” document was warning against. Needless to say, I’ll be sampling these, though Emily recollects they’re less useful than the ABFM in training exam materials.
- Monthly Prescribing Reference (print version): still evil (drug money funded), still remarkably useful. Trick is to know what drugs are actually used vs. what are legacy — would be nice to have a version filtered by popularity.
I’m alternating topical work (reviewing Sanford, relearning EKG interpretation) with review designed to rebuild old memories. My medical knowledge network is frayed and fragmented, but there’s a lot of it. Much of my preparation is really resurrection. I've brute memorization ahead - reading, closing eyes, regurgitating. Then exam-guided note review and expansion.
It will be interesting to see how it all goes. Failure is certainly an option.
- fn -
[1] Dear ABFM: Please note the current cycle progress tracker omits CME requirements but the future cycle includes CME requirements. Could be fixed.
[2] In the late 80s through early 90s we used to get 360K floppy disks each month with a unique DOS based medical simulation. I cannot, just now, remember what medical publisher did them (something Cardinal?). I remember them as quite excellent, I featured them in our residency computer-based training program. Several clinicians, likely retired now, did some serious work on those. There really is no modern equivalent. Which is a kind of interesting.
[3] UpToDate is by far the dominant online resource for medical information — and it’s very expensive. (Priced for organizations.)
[4] See [2]. Also the movie Groundhog Day.
Update 11/22/2015
I don’t know my exam results yet, but it went more or less as expected. The test environment worked well — though it took me a while to realize I had to select text then click a secondary highlight icon that floated nearby to get highlighted text for review. My foot pulled a power cord out, but when our proctor fixed it everything worked. For most modules and sections there was ample time. We do get markers and writing material, I didn’t see that mentioned in the ABFM exam descriptions.
The AAFP board review questions and the ABFM provided residency training exam questions were a good guide. The AAFP questions generated CME credit, but I liked going back and forth. Whenever the questions exposed an unfamiliar topic I went off and did guided studying. There’s an AAFP board preparation page that provides USPSTF screening guidelines that’s quite useful.
FP Notebook was, and is, outstanding. I wouldn’t make many changes to my studying, but I’d have stared using FPN intensively sooner than I did. It is a perfect way to bring old knowledge on board, to identify obsolete knowledge, and to extend the sample exam question critiques. It’s also a great way to review medication information. Beyond FPN I mostly used American Family Physician articles and a handful of textbooks.
My key book references were The Washington Manual, Sanford antimicrobial therapy, MPR Prescribing Monthly, Emily’s ACLS “cards” and my venerable med school EKG primer. That’s similar to 2008, but since then my presbyopia has not improved. This year I found the app versions more readable than the paper versions; the Sanford and Washington Manual print text seemed microscopic. The Sanford app is a $40/year subscription, but Emily uses it too (we share same AppleID for purchases). My paper Washington Manual came with a free code for the electronic version, hosted by inkling.app (iOS). I barely looked at the paper manual, but I used the inkling version often.
The ABFM Maintenance of Certification examinations (I had to do 6!) were not particularly useful preparation for the board exam. I don’t think the maintenance exams a useful guide to real world practice either — they are much too esoteric. I regret the time and money I spent on those, but of course we don’t get a choice.
Even though most physicians would have key references like Sanford, Up To Date and drug information at their fingertips our board exams still rely on brute memorization. I suppose they’d be too easy otherwise. Given the years since I’d done family medicine (1994), and the years all by themselves, memorization was not particularly easy. I had to interact with information. I took handwritten notes on exam questions that I knew I’d never look at — but the writing process was important. I created my own spreadsheets of drug information for antimicrobials, antidepressants, anticoagulants, and, above all, oral diabetes meds (mercifully lipid therapy has gotten much simpler!). In each case I created my own groupings (med classifications), frequently reorganizing them. It helped to organize medications but their modern use, rather than by the sequence in which I encountered them. For the oral diabetes meds I would attempt to recreate my classifications by memory, then see where I got them wrong, then repeat… At about 30-40min of painful memory work a day it took 3 days to learn them.
I moved my old notes into OmniOutliner Pro 3 — itself an old piece of software. This was a ‘back to the future’ moment as my notes started out decades ago in a similar product - Symantec’s MORE 3.1. After a couple of weeks of study I could recognize what was worth keeping, what needed to be rewritten, and what should be deleted (much of lipid therapy!). I updated my old references with FP Notebook on a separate screen; this process helped tie old knowledge to new knowledge.
The old knowledge was important — during the exam I found myself dredging things up from 25 years ago. I was surprised I could get anything from that far back, but really most of my medical base is from that era. For this exam I was largely refreshing and resurfacing it.
I’ll find out some weeks from now whether I need to do it again in a few months, or years, or perhaps never again.
Update 1/25/2015
I passed the exam by a substantial margin. If the maximal score represents percentile I scored about the 75th. That’s much lower than my score when doing academic practice, but it’s not bad for 20 years without patient care.
I did well in all the areas I studied. I didn’t do as well in obstetrics and gynecology, but I strategically omitted them.
My studying approach worked quite well for me.
Thursday, August 27, 2015
Pectus Excavatum complications - beware neck strike during barbell Clean
I am deformed …
Current Management of Pectus Excavatum [jf: depressed sternum associated upper chest]
Pectus excavatum (PE) is one of the most common anomalies of childhood. It occurs in approximately 1 in every 400 births, with males afflicted 5 times more often than females. PE is usually recognized in infancy, becomes much more severe during adolescent growth years, and remains constant throughout adult life. Symptoms are infrequent during early childhood, but become increasingly severe during adolescent years with easy fatigability, dyspnea with mild exertion, decreased endurance, pain in the anterior chest, and tachycardia. The heart is deviated into the left chest to varying degrees causing reduction in stroke volume and cardiac output. Pulmonary expansion is confined, causing a restrictive defect.
Repair is recommended for patients who are symptomatic and who have a markedly elevated pectus severity index as determined by chest X-ray or computed tomography scan…. Operation rarely takes more than 3 hours, and hospitalization rarely exceeds 3 days. Pain is mild and complications are rare, with 97% of patients experiencing a good to excellent result. The new minimally invasive Nuss repair avoids cartilage resection and takes less operating time, but is associated with more severe pain, longer hospitalization and a higher complication rate, with the bar remaining for 2 or more years…
My chest wall deformity is moderately severe, not as impressive as the wikipedia photo. A correction attempt was made at age 15 or so, but without the reinforcing “bar” used now. The post-operative pain then was not “mild”, it was exquisite — at least during breathing. The collapsed lung or two probably didn’t help. (I suspect my surgeon was pleased I survived). The deformity recurred, but my operative experience cured my psychic distress. I decided having an “ant’s swimming pool” wasn’t so bad after all.
Reading the above description it seems I can blame my unimpressive athletic career on my chest wall. Come to think of it, I did feel quite tired this morning on the fourth round of 400 meter sprints and as-many-reps-as-possible box-jump-over burpees. [1]
All of which is a prequel to new knowledge. I’ve figured out why I’m the only person at CrossFit who tends to hit their neck when doing a barbell “Clean”. With most people, even with poor technique, the upper chest pushes the bar away from the throat. With me it directs the bar towards my throat.
So there you go. For all the other persistent Pectusoids out there, if you are doing a barbell Clean pay attention to hitting your mid-body target and work on your technique — your pectorals will not save you.
[1] Sarcasm here should hint that this abstract’s disability description is debatable. In reality it is unclear how much cardiopulmonary compromise there is, and whether surgery really helps. Some articles suggest it helps cardiac function but worsens pulmonary function. There are big nocebo (deformity) and placebo (surgery) effects that make outcome evaluation difficult.
Update 8/31/2015: After writing this I realized I have a genuine CrossFit disability. I can’t do an “Rx” pushup, because I can’t touch my upper chest to to the ground (lower chest gets in way, not to mention my shoulders and head). During WODs I use an Ab Mat as a target, but I couldn’t do that in competition.
Tuesday, August 25, 2015
Mountain biking: A good sport for heavy kids?
I help out with a High School mountain biking team; it’s a team #1 rode with last year. (He might be first special needs student to compete in a NICA high school race, though I wonder about the Utah league.) It’s a sweet deal — I do adult things, carry the first aid kit, and help with team communications; in turn I get to ride with a great group of adults and kids while I get quality coaching by listening and practicing with our riders. #1 helps too, I’ve made it part of his post-high school “transition” training.
One of the things I've heard from the coaches is that heavy kids tend to do well with mountain biking. The bike takes a lot of weight off knees and hips and, by necessity, these kids have powerful legs. Weight isn’t a big disadvantage on the downhills. Being heavy does make climbs harder, but that work boosts conditioning. Heavy kids who go to practice lose fat and gain muscle, so they improve faster than slimmer riders. That rapid improvement is a powerful reinforcer. If they persist they keep the powerful leg muscles and lose fat — and become quite competitive.
I see the logic. It would be interesting to get some data, but I couldn’t find any studies in the medical literature. It could be a fun research topic.
[1] He may be the only special needs student, so far, to compete in high school mountain bike races.
Wednesday, August 19, 2015
Amazon reviews show a Shimano SPD pedal has a safety defect. Do Amazon and Shimano have a duty to report under US law?
I’ve sent two sets of Amazon purchased SPD pedals to Shimano for warranty replacement in the past month. I’d used each set for 2-3 months when they developed bearing clicks.
That could be bad luck, or it could be Shimano has lost control of its Chinese manufacturing pipeline. I’m just too small a sample to know.
But that’s not what I’m curious about.
I’m curious about Shimano’s apparent disinterest in the Amazon reviews of the Shimano PD-A530 SPD Dual Platform Bike Pedal. Many reviewers, over several years, have described the same safety issue I ran into. These pedals have two sides, a flat side for shoes and a “cleat” (confusingly these are called “clipless pedals") side that locks onto metal tabs attached to bicycle shoes. The clip lock setting is far too tight, at the default setting it’s quite difficult to remove a shoe from the pedal. Maybe the spring is the wrong tension, maybe there’s some other design error, but this is dangerous. Reviewers report falling over in traffic due to excessively tight clips.
The workaround is to set the adjustment bolt to its minimum setting (though the bolt is more cheaply made than other SPD pedals, so you have to work it a bit to make sure the nut slides down). On every other SPD pedal I’ve worn over about 15-20 years this would be too slack, but on these pedals it’s about right. Of course a lot of cyclists won’t know to do this, or won’t immediately recognize that the pedals are miscalibrated. It’s a persistent safety defect.
Under US law both Shimano and Amazon have a duty to report safety defects...
Duty to Report to CPSC: Rights and Responsibilities of Businesses | CPSC.gov
If you are a manufacturer, importer, distributor, and/or retailer of consumer products, you have a legal obligation to immediately report the following types of information to the CPSC:
… A defective product that could create a substantial risk of injury to consumers...
… Failure to fully and immediately report this information may lead to substantial civil or criminal penalties. CPSC staff’s advice is "when in doubt, report.” ...
…
What if I receive information that reasonably suggests my product could create a safety or health hazard but no reports have been received alleging that actual harm or injury has been suffered?
You must immediately report the information about the product. The law does not require injury or harm to have occurred….
It’s clear these pedals have a defect, though a defense lawyer would argue about “substantial risk of injury”. After all, it’s the nature of clipless pedals to reduce foot-to-ground time, and a lawyer would argue that only knowledgeable people should buy a clipless pedal, and thus know how to adjust them.
It would be unwise, however, to rely on the kindness of US courts. I suspect if Shimano’s lawyers read the Amazon reviews they’d recommend doing a (confidential) CPSC report and fixing the darned pedals. Judging by the age of the reviews, however, they haven’t done the latter.
Which is interesting. Why doesn’t Shimano read Amazon reviews of its products? And what are Amazon’s obligations as a distributor or retailer?
Great questions for a law school class ...
Update 8/5/2016: Shimano sent me a replacement for the clicking PD-AF530 pedal. After less than 10 months of light use it developed a severe creak/click. Trash.
Monday, August 17, 2015
And now for something somewhat different
A somewhat wise traveler walks a path in deep desert.
He comes across a turtle that has fallen on its back. Having some wisdom he carries the turtle to its shelter. As he turns to his path a clap of sound and light announces a Djinn.
“Oh wise traveler, you have proven your worth. For you I grant a great gift. I shall open a gate to the garden of paradise. From there you can choose a flower of immortal beauty to bring you joy and peace for all your life. Come and enter …"
“Ok. Stop there. I know this one. It’s that paradox of choice schtick. I enter the garden and everything is so wonderful my brain is like, totally blown. I wander the path but, of course, I can’t go back. Only forward. Every flower is more beautiful than the last — but I can only pick one. At first my path seems unlimited, but then I see the end in sight. I start to panic. Finally, in desperation, I grab the last flower. It’s kinda nice, but I’m left a bitter wreck for all the better flowers I coulda picked. Yeah, nice try, but I wasn’t born yesterday. Get thee hence Devil!"
The Devil, for the traveller has seen correctly, smiles and tips his hat. You are indeed wise, he says. Then he blasts the not-wise-enough man to eternal hellfire. [1]
When the Devil plays, you let him win.
-
My job died.
Our relationship lasted between 16-20 years, depending on whether or not I count time at an acquired startup. I started out a country doc, did a health informatics degree (thank you NLM), and I became a corporate health care IT R&D guy. For lack of alternatives I was "product management", but mostly I invented and implemented tools for health care workers to use - usually for patient care, more recently for analytics and population management. My real love was making docs smarter — that’s why I went into the business. In my GP days I was frustrated by not knowing the right stuff quick enough to provide the best care to my patients.
We had our ups and downs my corporation and I. My place in that world required skills I wasn’t born to; it was a fascinating challenge to learn those and survive (many thanks to several of my managers and mentors!). The corporation had its own issues [2], so the relationship required mutual forgiveness as well as mutual need. Like most relationships. Even during not-fun times the job was good for my family.
Alas, over the past few years the business changed. Eventually there was little need for a clinical decision support expert. Even I couldn’t see a way to justify my cost — the work didn’t exist any more.
My job died, but it left me an inheritance - some time to choose my flower. Or invent it.
-
When I have to invent a solution, I look for constraints. Constraints are my friends; without constraints choice explodes. I have some constraints.
Age is a big one - I can see the garden’s exit. My exercise hobby gives me back some things, but it doesn’t change time. It would be good for my family if I earned some money. My family medicine board status expires this year, so i have to make a choice there. My family is strongly rooted, for the moment, in the most excellent Twin Cities of Minnesota. I have duties to my family that are perhaps above average.
Within these constraints there are things I’d like for myself. I’d like to give something positive to the world, something that might last a few years, something that I have a meaningful part in choosing and building. I would prefer not to join another large publicly traded corporation; I’ve done that one. I have a particular interest in cognitively disabled people. I’d like to do something I haven’t done before.
-
I did decide to take my (last) family medicine board exams. Over the past 3 weeks I’ve completed the qualifications to write the board exam in November. That process was considerably more painful than it needed to be, but that’s not my battle to fight (age teaches something). Preparing for that exam will take me 10-20 hours a week for the next 4 months.
I have technical debt from years of juggling work and family and health to manage. I’ve had a surgery I’d delayed. I’m cleaning up finances that got cluttered over decades. Family photos and videos, home stuff — things like that. More importantly, focusing on some special needs of my children, and taking each child on a plane trip (Montreal and San Francisco down, next up - London!). Oh, and taking my 93 yo father to visit his sister in San Francisco (just keep breathing for another 3 weeks everyone). That’s taking another 10 or so hours a week.
Then there’s exercise - mountain biking, road biking, CrossFit, inline skating — most of which also serves the needs of one child or another. That’s another 10-15 hours. Household maintenance takes time, it’s been a rough month for bikes and phones and computers. Writing, because that’s how I think and pay my geek dues. Exploring new tools and techniques especially on my post-corporate MacBook Air [3]. Learning FHIR and JSON data wrangling, catching up on 5 years of JAMIA articles, and other deferred professional obligations.
That all leaves a few hours a week to figure out my next move.
I’ll probably write about it.
- fn -
[1] I remember reading the original version of this story, but Google can’t find it for me. Maybe it was another universe. Related: "Life can only be understood backwards; but it must be lived forwards."
[2] Contrary to the Supremes, corporations are not people. They have their share of quirks though; partly cuz they contain people, partly because they’re slouching towards Bethlehem.
[3] It is insanely bad luck to say that this is the most trouble-free and immediately useful device I’ve every purchased. I love buying mature Apple hardware, though I note that the iPhone 6 and new MacBook have had less quality issues than I expected. Now if Apple can only fix their software quality issues and seven years of lousy products ...
Tuesday, August 11, 2015
2015 vs. 1910 - which era has more future shock?
Remember Alvin Toffler’s Future Shock (helps to be old)?
Wikipedia, via this:
"Toffler argues that society is undergoing an enormous structural change, a revolution from an industrial society to a "super-industrial society". This change will overwhelm people, the accelerated rate of technological and social change will leave them disconnected, suffering from "shattering stress and disorientation" – future shocked. Toffler stated that the majority of social problems were symptoms of the future shock. In his discussion of the components of such shock, he also coined the term "information overload”."
Toffler was wrong about his era, and probably wrong in general. 21st century China shows humans can tolerate a vast amount of technological and social change and keep on moving on. Future Shock is more like a winter carpet zap than a lightning strike.
It can still sting though. This past week, for example, we realized landlines are finally gone — at least in Minneapolis St Paul.
Yeah, I know. They were supposed to be dead years ago. Ahh, but that’s the trick. What I remember in 1994 is that by 2000 we were all going to have fiber to the home; voice communication would be VOIP and too cheap to meter. It didn’t work out that way. It’s easy to predict the Future, it’s hard to predict when the Future will happen.
Instead landlines seemed to slowly fade. No big changes. For various reasons we kept our home number on a landline. We didn’t notice that Saint Paul Minnesota was down to a a single provider of landline services - CenturyLink. We didn’t notice the 30% drop in CenturyLink's share price. Then one day our CenturyLink landline malfunctioned, we lost net service, and we couldn’t get it repaired. We’ve been without landline service for two weeks; a repair guy may drop in this Thursday. Maybe.
I switched our net services to the only alternative our benighted metro area has - Comcast. I forwarded the home number to our cell, and, because our security system is landline based, we wait for a repair while figuring out what to do with our identity-associated home phone number.
The line will be repaired, or not, but that won’t change the fact that for Saint Paul, Minnesota, the landline era really has ended. A wee bit of Future Shock for old folk, and a minor puzzle for our kids (who have almost no understanding of how anything connects to anything else).
Which makes me think, again, about how this era compares to the early 20th century, when horses went from vehicle to entrée, the kerosene industry collapsed, and balloons turned into airplanes. Consider the auto transition - the first mast produced automobiles were sold by Olds in 1902, by 1910 there were more automobiles than horse buggies, and by 1920 buggies were mostly gone. So a 20 year transition. Not that different from the timeline of our landline decline, but far more disruptive.
On the other hand, landlines and horse buggies are physical things. They have a lot of momentum. What about transitions in virtual things? Can the speed of transition there make our era more bewildering than, say, 1910?
On reflection, I have to say not. That automobile transition is truly incredible. We still can’t compare. Maybe when the AIs take over..
See also
- Gordon's Notes: Toffler: of Future Shock fame 11/2004. A relatively recent interview quote. He’s 86 now.
- Gordon's Notes: Future Shock: Charles Stross and Alvin Toffler 6/2007
- Gordon's Notes: The Brave New World of Psychic Reengineering and Robotic Monkeys: Be Afraid? As it turned out, not so much. Bit like impact of 3D printing, which is far slower than expected. Perhaps until it isn’t. 8/2004
Wednesday, August 05, 2015
Donald Trump is a sign of a healthy democracy. Really.
I’m a liberal of Humean descent, and I’m a fan of Donald Trump.
No, not because Trump is humiliating the GOP, though he is. Of course I enjoy seeing the GOP suffer for its (many) sins, and it would be very good for the world if the GOP loses the 2016 presidential election, but Trump won’t cause any lasting political damage. Unless he runs as a third party candidate he’ll have no real impact on the elections.
I’m a fan because Trump appears to be channeling the most important cohort in the modern world — people who are not going to complete the advanced academic track we call college. Canada has the world’s highest “college” graduation rate at 55.8%, but that number is heavily biased by programs that can resemble the senior year of American High School (in Quebec, CEGEP, like mine). If we adjust for that bias, and recognizing that nobody does better than Canada, it’s plausible, even likely, that no more than half of the population of the industrialized world is going to complete the minimum requirements for the “knowledge work” and “creative work” that dominates the modern economy.
Perhaps not coincidentally about 40-50% population of Canadians have an IQ under 100. Most of this group will struggle to complete an academic program even given the strongest work ethic, personal discipline, and external support. This number is not going to change short of widespread genetic engineering...
This cohort, about 40% of the human race, has experienced at least 40 years of declining income and shrinking employment opportunities. We no longer employ millions of clerks to file papers, or harvest crops, or dig ditches, or fill gas tanks or even assemble cars. That work has gone, some to other countries but most to automation. Those jobs aren’t coming back.
The future for about half of all Americans, and all humans, looks grim. When Trump talks to his white audience about immigrants taking jobs and betrayal by the elite he is starting a conversation we need to have.
It doesn’t matter that Trump is a buffoon, or that restricting immigration won’t make any difference. It matters that the conversation is starting. After all, how far do you think anyone would get telling 40% of America that there is no place for them in current order because they’re not “smart” enough?
Yeah, not very far at all.
This is how democracy deals with hard conversations. It begins with yelling and ranting and blowhards. Eventually the conversation mutates. Painful thoughts become less painful. Facts are slowly accepted. Solutions begin to emerge.
Donald Trump is good for democracy, good for America, and good for the world.
See also
- For American adults are poverty and disability the same thing? 10/2013
- The Post-AI era is also the era of mass disability 12/2012
- Unemployment and the new American economy - with some fixes 1/2011
- Deficits, climate, BP and immigration: Saving America is suspiciously easy 7/2010
- Dynamic stability: struggle and balance in minds, brains, genomes, pregnancy, politics, ecosystems and economies 1/2015
- Mass disability and Great Depression 2.0 3/2008
- Mass disability goes mainstream: disequilibria and RCIIT 11/2011
- Salmon, Picketty, Corporate Persons, Eco-Econ, and why we shouldn't worry 4/2014
- Civilization is stronger than we think: Structural deficits and complex adaptive systems 5/2010
Thursday, July 23, 2015
Sleep disordered breathing Catch-22: sleeping with post-operative nasal obstruction and an unreliable oral airway
How would a cetacean live with a blocked blowhole?
The question was asked in a 1986 newspaper column ...
A--Whales and dolphins breathe only through their blowholes, nostrils found on the tops of their heads, according to Daniel Odell, a professor of marine biology at the University of Miami. In the unlikely event that their blowholes are blocked or damaged, the animals would probably suffocate, Odell [1] said.
These animals have no connection between the esophagus and the larnyx, and breathing through the mouth is therefore impossible. While underwater, these animals seal their blowholes by means of powerful muscles.
I suspect Dr Odell actually said the cetacean would definitely suffocate; their anatomy means they are truly obligate nose breathers.[2][3]
Humans, in general, are better off. We aren’t obligate nose (blowhole) breathers, we can breathe through our nose and our mouth…
Oops. I should have said adults can do that. Human infants are almost obligate nose breathers [4], if their nose obstructs they are desperately unhappy and cannot readily sleep [4]. But it’s not just infants, many human adults have great difficulty switching from nasal airways to oral routes when sleeping: "Several patients also had a greatly increased number and severity of episodes of nocturnal oxygen desaturation”.
Humans, it turns out, have a bit of dolphin in them [3]. Our nasal airways are a primary breathing system, our oral airway is a backup system and a turbo-charger for high rates of gas exchange (as in running). If we breathe predominantly through our mouths we experience dental and soft tissue problems. Our nasal airways have a lot of complex adaptation to manage the challenge of large volume gas exchange including autonomic control systems that shift air flow from one nostril to another [5] and “turbinates” (soft tissue mounds) that direct air flow [6].
Actually, I think of us as having 2.5 airways. We have the turbo-charger/emergency oral airway and we have two nostrils that shift air flow between them and act somewhat independently. But that’s just me.
Which brings me to … me. Yes, this is one of those tediously long individual medical anecdote blog posts. It’s my anecdote of managing sleep for seven days with a post-operatively obstructed blowhole (nose) and an unreliable oral airway. The Catch-22 is that the same conditions that made the surgery necessary also mad the post-surgical experience very difficult.
I’m hoping that this writeup will be useful for people in similar circumstances, and for their caregivers. It’s long enough that it has sections - thee first is your informed consent. The second covers what most physicians won’t know. The rest are for the inexplicably persistent.
Informed Consent
I don’t see patients, but I’m a physician and science-based medicine is one of my interests. Over the past few decades I’ve seen several rediscoveries of what we used to call evidence-based medicine. That’s the earnest (and important) attempt to reduce the number of times we hurt people by fervently recommending something that’s totally wrong. All of these programs come up with a grading system for medical knowledge, something like ...
Grade A: Recommendation backed by really well done randomized clinical trials. That’s how we know that Magnesium Sulfate is great post-MI [7] and every woman over 50 should be on estrogen for osteoporosis …(*cough*). Right. Even the best double-blind randomized controlled trial research isn’t terribly reliable. How we deal with that is a topic for a different blog post [8].
Grade B: Research trials and animal models that funky statistical massaging of big data sets that give us a good reason to try something relatively harmless (we think) or to fund better research.
Grade C: Expert opinion from the great gurus. The kind of opinion that gave us thalidomide for morning sickness and bed rest for back pain. AHA “911” guidelines are Grade C. Yeah, Grade C is moving into coin flip territory.
This blog post is grade D. Medical anecdote — which is more useful than I was once taught but is still very unreliable. I’m a family physician who designs clinical software — I haven’t seen a patient in 16 years. On the other hand, I have discovered that diseases have a differently look when seem from the inside instead of the outside. So there’s that. In any case, you have been warned.
Managing post-operative dual airway obstruction
Some adults are semi-obligate nose breathers when sleeping. If we can’t breathe through our noses we don’t breathe. We may accomplish a partial failover to the backup oral airway system, or we might awaken with pleasant dreams of suffocation (or we might die, but we don’t understand that very well). If we continue sleeping we may drop our oxygen levels below what our brain demands.
So what can we do? The usual prescriptions for sleep disordered breathing are weight loss [11] and CPAP. Since diet and exercise rarely produce significant weight lost the first of these usually requires costly and complex surgery. Nasal CPAP, assuming insurance companies would pay for it [10] would be working against a closed passage — that’s not going to go well. On the other hand oral CPAP is nasty (oral airway is second best, doesn’t have filtering and warming, etc) and, of course, there’s the obligate nose breathing problem.
There are other options (see the long version), but my particular nose was obstructed by deviated cartilage/septum on the left and by hypertrophied turbinates on the right — the legacy of anatomy, age, and allergies. I’d failed two years of intensive allergy therapy including twice daily Neti Pot irrigation “with (*cough*) sterile water”. So I opted for nasal septum reconstruction (I think it’s more than septum really, but I’m not a surgeon) and resection of the right medial turbinate. My results at this moment are excellent, but we know long term results may be often unsatisfactory for older adults.
in any case this post isn’t actually about whether nasal airway surgery is a good idea, or has lasting benefit, or the overlap between sleep disturbance and sleep apnea. It’s about how one somewhat obligate nose breather managed to get enough sleep to live [20] be semi-functional during the post-operative week where the nasal airway is shut down by blocked stents [14]. I used 3 devices, all of my own devising [18]. There was no insurance coverage for any of them, so the cost would be prohibitive for most Americans.
Device 1: CMS-50E OLED Fingertip Pulse Oximeter $74
I wanted an alarm to sound if and when I desaturated. Amazon has many low quality oximeters for under $100 , but most don’t have an alarm. The “CMS-50E” has both an alarm and the theoretical ability to export data to a CSV file.
In practice it alarmed several times, but some of them appeared to be false alarms related either to software glitches or low power. I think there were one or two genuine desaturation events. It did reassure Emily and I that most of the time I seemed not be desaturating (she could read it while I slept). I taped it to my finger to keep it in place. It comes with an unreadable paper direction set, but it’s not hard to find a readable PDF version on the web. That does not mean one can understand the directions! Hint — there’s only a single button with two modes - quick press and long press. Long press is how one selects menu items. You have to set alarm threshold (default isn’t bad) and enable the alarm. I compared readings to a non-alarming $45 oximeter I’d bought earlier, they had similar readings. With correct finger placement the readings had at least “face validity”.
There’s a $250 device that uses a similar cheap probe, and lacks an alarm, but can do some data export: Masimo iSpO2 Pulse Oximeter (30 Pin Connector with Large Sensor for Apple iOS Device).
Device 2: Maintaining oral airway patency by supine neck extension $3
Anesthesiologists know about keeping flaky oral airways open (which is a sign of how unreliable an isolated oral airway is, it often fails in sedated patients). They manually advance the lower jaw (mandible) — but that’s hard to do on one’s sleep self. They also place a roll just beneath the upper thoracic vertebrae (upper shoulder blade) to extend the neck. Since I suspect one reason that i’m an obligate nose breather is that my oral airway sucks (pun) [17] I used this both with and without a very flat pillow. I was completely unable to follow my surgeon’s recommendation to sleep in a semi-seated position - my oral airway collapsed within seconds of early sleep.
The straps kept it rolled up and I threaded them through a T-shirt to help hold the roll in position. I think it helped in the first few days post-operatively.
Device 3: An oral prosthesis to force mouth breathing $300-$400 or more
This was the key, though none of the four quite good physicians I saw knew of it. Or if they knew of it they weren’t able to connect that knowledge to my problem. I came up with the idea and proposed it to my dentist, who told me I’d reinvented something well known to dentists: Oral Appliance Therapy (see also weirdly good wikipedia article on mandibular advancement splint).
The particular splint he created for me fit onto my lower teeth (fairly comfortably, he’s a good dentist). It separated my molars and had a frontal ridge that was supposed to catch my upper front incisors and thereby stabilize the lower jaw. Perhaps because my lower jaw is so wimpy [17] it didn’t seem to do very much, but the separation of my molars was just barely enough to overcome my natural disposition to clamp my jaw firmly shut when sleeping and help open a small passageway that, with much noise and struggle, I would breathe through while sleeping [19].
There are many designs for these mandibular advancement splints, I suspect there’s not a lot of knowledge about which work best for which people. This particular design just barely worked for me in the post-operative period and it wasn’t enough to let me skip the surgery. For some people a mandibular splint might provide enough support for a not-completely-obstructed nose to avoid surgery altogether.
These 3 devices, but especially the mandibular advancement splint, let me sleep post-operatively.
This would be a good place to stop reading, because the longer version goes into more details on the post-operative course and the clinical presentation...
Post-operative course
The surgical procedure took about an hour. Afterwords I was fine. My nose was obstructed of course, but I never had any significant post-operative discomfort. That surprised me, I suspect a well done cocaine nerve block.
At night things got nasty. I’d already experienced two years of intermittent suffocation, and the first two nights did not disappoint. Sleep felt like wrestling with a mountain lion. The second night was the worst because i was also sleep deprived, the 3rd and 4th were not a lot better but I did get a few hours of sleep, and by the 5th and 6th night I was doing significantly better. I think the improvement was partly diminished drainage, and early my body adapting to oral airway breathing. According to my wife the breathing sounds were quite impressive.
I found it useful to count to 40 breaths through my mouth while wearing the mandibular prosthesis, the drill seemed to help my troubled transition to an oral airway.
in addition to the devices mentioned above it helped to drink a lot of fluids and to get out of bed every 60-90 minutes and clear as much drainage as possible without, of course, blowing the nose (that’s apparently disastrous, and it felt like a very bad idea). If you were ever a 9 yo boy you probably remember how to maximize spitting distance. The same noisy and revolting technique applies. This especially worked after day 3 when the big dark clots come out.
I used the Neti pot nightly as my surgeon recommended. It didn’t contribute much as my nose was adamantly blocked, but I think it reduced discomfort related to dry clot.
For the first 4-5 days I wore a “mustache dressing” below the nose; contrary to the way it was taught me I found folding a 3” gauze into 3rd worked better than half. It has to be worn with minimal pressure or the tissue around the nose gets sore. I administered vaseline before applying.
Although I had no pain hydrocodone pain meds helped with sleep, probably because they make it easier to tolerate discomfort and perhaps because they make suffocation more tolerable.
Air conditioning was helpful too, I don’t know why.
The stent removal didn’t bother me in the least. I was immediately able to breathe very well by nose. The Neti post was very helpful for the 3-4 days post stent removal, I used it twice a day. I resumed my antihistamine allergy spray post-stent removal but held off on steroid spray for one week. I then returned to a reduced version of my allergy regimen.
There were 7 medication related physician errors with my post-operative period. None of them caused any harm; they provided some light amusement for Emily (also a family physician) and I. Still, not great.
The presentation
I’m going to finish this up with a part that might be of interest to physicians. Namely, how did I first present with this problem. In brief, weirdly.
Two years ago, while on vacation in Florida after a long drive, I awoke at 2am sweating, breathing deeply and rapidly, with my heart pounding. It felt like a sleep terror, but I was about 40 years too old for those. My initial thoughts were about where best to leave my corpse given that the kids were in the room. I assumed i was having a major cardiac event, a new rhythm disorder (most likely), or a likely fatal pulmonary embolus (my mother had recurrent PE). On the bright side, maybe some degenerative neurologic disorder was manifesting as late onset panic attacks or a new variant of my adolescent sleep paralysis.
It never occurred to me that my airway had completely obstructed. In all my (admittedly dated) reading of sleep apnea I hadn’t read of such an acute onset. (Which may be another example of the fundamental problem with medical disease descriptions.)
Over a few minutes everything settled down. I felt fine, if somewhat anxious. Which didn’t fit most of my diagnoses, save perhaps the neuropsychiatric. At this time many physicians would have sent me to the ED, but for various reasons this would have been unusually difficult for my family. So I went back to bed.
The problem recurred intermittently over the next few weeks, generally in a milder form. Then, on return home, it resolved. Until a couple of months later when it recurred and was associated with a sensation of “air hunger” (not getting enough air on deep breathing). So, after a bit of dithering, I went for my pulmonary embolus evaluation. Which, to the great surprise of both the ED doc and my wife and I, was negative. EKG was fine too, not to mention that I was into regular CrossFit by then. i’d be dead if I had a cardiac problem.
It was after ruling out the obvious causes, and having more regular recurrences, that I figured out that I was awakening due to asphyxiation. My nose, which had been gradually getting less functional over 30+ years, would completely obstruct, and I would fail to activate my backup oral airway. Which is, to be frank, quite weird. It took me a while to figure that out because I didn’t think it was possible. I suspect a non-physician would have made the diagnosis months before.
After we knew what was going on I did see an ENT and I attempted (but failed) to meet up with a sleep specialist [22]. I then embarked on my family doc's recommendation of Neti pots and maximal medical therapy — in part because of my research showing uncertain long term value of nasal surgery and in part because medical types don’t trust surgeons. I got to maximal medical therapy after an allergist visit, and when that failed I opted for surgery. It was during the two years of medical therapy that I came up with my approach to the post-operative period.
- fn - (lots)
[1] Dr Odell joined SeaWorld in 2001. I assume he’s retired by now, but hope he’s doing well. The web gives us odd glances into people’s lives.
[2] So how do cetaceans produce sounds you ask? Well, that’s where things get weird and fascinating — too odd to put into a blog post. Cetaceans have sets of laryngeal air sacs that may, or may not, be analogous to our (useless?) paranasal sinuses. So one theory is they vocalize like a Scottish bagpipe (used as a comic illustration in that article). The best article I found was a fine post in a flaky sounding blog; turns out there’s a surprising amount of uncertainty. The article doesn’t explain why captive dolphins open their mouths when demonstrating sound production in air.
[3] The fact that an aquatic mammal can evolve to segregate oral and nasal airways does put an interesting spin on human obstructive sleep apnea. We are notoriously good swimmers for a land animal. Alternatively, we also are notoriously good at producing complex sounds, that ability might also have required some compromise of our airway systems. Natural selection would not produce a compromised airway system without a powerful adaptive advantage [4]...
[4] Are infant chimpanzees obligated nose breathers? It would be fascinating if they were not.
[5] Many people notice that one nostril or another is dominant at different times, including variations with head position. This isn’t a random thing, it’s a control system that, we assume, enables tissue rest and recovery.
[6] Years ago surgeons managed some kinds of nasal airway problems by removing the turbinates. This worked well at first, but then patients developed “Empty Nose Syndrome”. Which, of course, we don’t really understand. The neurophysiology of nasal breathing is complex. Incidentally, the nose is much bigger than you think.
[7] Nobody but me will remember the @1992 Mag Sulfate post-MI study that made it into the textbooks but then was reversed by an even bigger study. At that time I was a keen young physician teaching curmudgeonly old braindead docs to use “Grateful Med”, with slides (real slides, or transparencies, prepared using Symantec’s MORE 3.1). I used the then obligatory graph describing the volume of medical knowledge and bemoaning the backwardness of physicians who didn’t read the latest journals.
That one small reversal shattered my faith. That was when I looked at 10 year old journals and saw how few of the “best” recommendations survived. I proposed, but never pursued, writing an article that tested the non-evidence-based idea that one should read medical journals. Thankfully others were more persistent than I and made a fine academic career of looking at the lifespan of grade A research results. I no longer see articles bemoaning physician failure to track the latest fads.
[8] Ok. The usual answer is meta-analysis. I think we need to look at predictive Bayesian models. So combinations of human clinical trials plus animal models plus biology … Yeah. Needs a separate blog post.
[9] Brains and hearts are the oxygen fiends. Presumably desaturation happens a lot more in Denver than in St Paul MN, but I haven’t seen much discussion of that.
[10] CPAP seems (do we have 15 year natural history studies?) to work well for sleep apnea and sleep disordered breathing - at least for people with working noses who can tolerate it. For reasons I don’t fully understand (expense of evaluation? expense of device/use?) insurance companies are reluctant to pay for it even as demand seems to be rising. So there’s now a big complex hassle around sleep disturbance evaluation, apnea diagnosis, and CPAP use. But this blog post isn’t about apnea ...
[11] FWIW if I got skinnier my wife would send me to an eating disorder program.
[12] What messes up the septum? Mine was deviated in childhood. The usual explanation is trauma, but I also have a developmental anomaly of my chest wall. So I wonder more about a developmental growth disorder. The allergies are a lifelong nuisance. My surgeon claims that it’s common to see hypertrophy of turbinates on the unobstructed side — presumably due to some mix of missing feedback, increased work, allergies, etc.
[13] Yeah, nasty brain eating protozoan. I probably should have paid to install a filtration system at home and just take my chances when traveling, but I just used tap water.
[14] My surgeon didn’t use old style packing, but “stents” have to placed to stabilize the septum. In my case they were removed one week post-operatively. In theory they are designed to allow air flow, but in practice they always obstruct immediately and cannot be cleared. Material used to reduce bleeding likely contributes to obstruction.
[15] CSV export requires use of a flaky Windows app I’d want to run through a first class malware scanner. I didn’t bother trying to configure it on my Mac VM.
[16] All sold only for “exercise monitoring”, not for medical use. Almost all the reviews are for medical use.
[17] I have the classic small weak puny jaw of the pencil neck geek. I was amazed by the quality of wikipedia articles related to airway problems — maybe there’s a small-jawed-geek-airway-syndrome to be discovered? Something related to maternal testosterone levels perhaps ...
[18] None of these were invented by me of course! I mean that I thought of them in the two years of dreading post-operative asphyxiation. If I had thought to read wikipedia instead of medical articles I’d have learned about the oral prosthesis immediately, instead of having to reinvent it and find my dentist made them. None of the four quite good physicians (and one inexperienced sleep specialist PA [22]) involved in my care, including one family physician, two ENT physicians and one allergist had anything useful to contribute to this particular problem. I think it’s a problem that falls into the black holes between medical specialties, and particularly between medicine and dentistry. Which is appalling, but not surprising. I’d be no better save that I had to solve this problem. The medical literature sucks. Which is why, of course, I spent hours on this blog post.
[19] So why do I firmly clamp my jaw shut while sleeping? I don’t know. My theory is that I have an anatomicaly lousy oral airway, and that I learned to clamp my jaw shut at night to stabilize it and allow nasal breathing before my nasal airway failed. I needed to undo that reflex to get through the post-operative period.
[20] I thought we couldn’t go more than 4-5 days without psychosis or serious health issues. i just now learned that’s wrong — in 1965 Randy Gardner, a 17yo madman, went 11 days for a science fair project. He seems to have subsequently led a fairly quiet life. He had a cat in 2006. So maybe I could have dosed up on modafinil and made a run for 7 days.
[21] Neti pots are one of those weird devices that seem perfectly hideous and revolting on first use but become relatively familiar and appreciated. It’s worth pushing through the initial ickiness to be able to use them for colds and allergies in place of medications. Just watch for the brain eating amoeba [13].
[22] The sleep specialist evaluation was a classic 2015 American medical fiasco. I ended up seeing a brand new (inexperienced) PA who recognized I didn’t fit the obese-apnea pattern they saw 40 times a day and didn’t really know how to proceed given my nasal obstruction and the expectation that I’d have disrupted sleep rather than sleep apnea. The roots of this mess-up had to do with all of the protocols sleep specialists and insurance companies have put in place in their CPAP revenue battles, a recent corporate acquisition of the practice, a problematic transition from sleep center to home sleep studies, and a disruptive electronic health record transition. This was my only medical-bust of the evaluation.
See also
- John Gordon: Sleep studies (apnea) have always been a pain, ... on App.net
- Gordon’s Notes: Nose and mouth breathing: a popular non-medical topic and a curious research deficit 7/2013
- To Treat Sleep Apnea, Some Shed a Mask - The New York Times 4/2012 “roughly 50 percent of patients in whom C.P.A.P. fails”
- Review of oral appliances for treatment of sleep-disordered breathing 2005. “oral appliances, although not as effective as CPAP in reducing sleep apnea, snoring, and improving daytime function, have a definite role in the treatment of snoring and sleep apnea.”
- Oral Appliance Therapy - AADSM
- American Sleep Apnea Association | Oral Appliance
- Sleep apnea - Wikipedia, the free encyclopedia
- Mandibular advancement splint - Wikipedia, the free encyclopedia